Family caregiver ambassador support for caregivers of patients with newly diagnosed hematological cancer: a feasibility study
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Family caregiver ambassador support for caregivers of patients with newly diagnosed hematological cancer : a feasibility study. / Husted Nielsen, Iben; Piil, Karin; Tolver, Anders; Grønbæk, Kirsten; Kjeldsen, Lars; Jarden, Mary.
In: Supportive Care in Cancer, Vol. 30, No. 8, 2022, p. 6923-6935.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Family caregiver ambassador support for caregivers of patients with newly diagnosed hematological cancer
T2 - a feasibility study
AU - Husted Nielsen, Iben
AU - Piil, Karin
AU - Tolver, Anders
AU - Grønbæk, Kirsten
AU - Kjeldsen, Lars
AU - Jarden, Mary
N1 - Publisher Copyright: © 2022, The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.
PY - 2022
Y1 - 2022
N2 - Purpose: This study investigated the feasibility of a one-on-one peer support intervention in family caregivers of newly diagnosed patients with a hematological cancer during initial treatment. Methods: The study was a one-arm feasibility study including family caregivers of newly diagnosed patients with hematological cancer (n = 26) and caregiver ambassadors who were family caregivers of previously treated patients as peer supporters (n = 17). The one-on-one peer support intervention consisted of three components: a caregiver ambassador preparatory course; 12 weeks of one-on-one peer support, and caregiver ambassador network meetings. Results: Family caregivers reported high satisfaction with the delivery and flexibility of one-on-one peer support and improved in most psychosocial outcomes over time. Telephone and text messages were the most used form of contact between the peers. Caregiver ambassadors reported high satisfaction with the preparatory course and used the available support from the network meetings. No adverse events were reported. Conclusion: One-on-one peer support provided by a caregiver ambassador is feasible and safe in family caregivers of newly diagnosed hematological cancer patients during their initial treatment. Utilizing volunteer caregiver ambassadors has the potential to be a new support model in family caregivers of hematological cancer patients across diagnostic groups within a clinical setting. Clinical trial registration number: NCT04039100, July 29, 2019.
AB - Purpose: This study investigated the feasibility of a one-on-one peer support intervention in family caregivers of newly diagnosed patients with a hematological cancer during initial treatment. Methods: The study was a one-arm feasibility study including family caregivers of newly diagnosed patients with hematological cancer (n = 26) and caregiver ambassadors who were family caregivers of previously treated patients as peer supporters (n = 17). The one-on-one peer support intervention consisted of three components: a caregiver ambassador preparatory course; 12 weeks of one-on-one peer support, and caregiver ambassador network meetings. Results: Family caregivers reported high satisfaction with the delivery and flexibility of one-on-one peer support and improved in most psychosocial outcomes over time. Telephone and text messages were the most used form of contact between the peers. Caregiver ambassadors reported high satisfaction with the preparatory course and used the available support from the network meetings. No adverse events were reported. Conclusion: One-on-one peer support provided by a caregiver ambassador is feasible and safe in family caregivers of newly diagnosed hematological cancer patients during their initial treatment. Utilizing volunteer caregiver ambassadors has the potential to be a new support model in family caregivers of hematological cancer patients across diagnostic groups within a clinical setting. Clinical trial registration number: NCT04039100, July 29, 2019.
KW - Family caregivers
KW - Feasibility
KW - Malignant hematological disease
KW - Peer support
KW - Psychosocial
KW - Supportive Care
U2 - 10.1007/s00520-022-07089-0
DO - 10.1007/s00520-022-07089-0
M3 - Journal article
C2 - 35543814
AN - SCOPUS:85129903403
VL - 30
SP - 6923
EP - 6935
JO - Supportive Care in Cancer
JF - Supportive Care in Cancer
SN - 0941-4355
IS - 8
ER -
ID: 307328152